Administration of the CFQ-R

Each questionnaire takes approximately 15 minutes to complete.

General Instructions:

• Give the CFQ-R to the respondent before completing any other procedural or clinical exam. This ensures that the interaction between the respondent and other health care professionals does not influence the CFQ-R responses.
• Tell the respondent that it is important to answer all questions.
• Remind respondents that only one response may be given for each question.
• State that there are no right or wrong answers.
• Remind patients that they are answering the questions based on their own experience with CF, NOT because of other problems.
• Remind respondents to answer the questions based on the time periods outlined for each set of questions.

Self-Administered:

• Children ages 6 to 13 (to be completed by the parent or caregiver)
• Children ages 12 and 13 (to be completed by the child)
• Adolescents and adults, ages 14 and above (to be completed by the patient)

Interviewer-administered Format:

• Children ages 6-11 (to be administered by the study coordinator)

Self-administered:

Provide the respondent with a pen or a pencil and a quiet place to complete the CFQ-R. Noisy waiting rooms and clinics can often be distracting.

The respondent should be alone when completing the CFQ-R. Parents or other accompanying individuals should wait in a separate area during the CFQ-R's administration. This minimizes any influence on the respondent's answers and ensures that the CFQ-R responses reflect the child's perspective, and not someone else's.

When the respondent has completed the CFQ-R, the study coordinator should review it to ensure all questions have been completely answered. If there are any missing questions, point them out to the respondent so they may be completed. However, respondents may omit any question they do not feel comfortable answering. If it is not possible to query the respondent, incomplete questions should be left blank.

Interviewer-administered format:

You will receive a blue and an orange card with different response options on them. Depending on which questions you are asking the child from the CFQ-R, you should place the appropriate card with the corresponding response options in front of the child. Be sure to complete the practice questions with the child!

Each section of the questionnaire provides instructions about which card to use. This will allow the child to clearly indicate his or her response for each question.

Read and, if necessary, repeat a question verbatim for the respondent. Do not interpret or change a question's wording.

Avoid verbal and non-verbal cues that may result in respondents changing their answers in order to impress or please the study coordinator.

Administer the CFQ-R in a quiet place to avoid interruptions and distractions.

Ideally, for children ages 6 to11, both the parent/caregiver self-administered version and the interviewer-administered version should be completed.

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